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Quality of Life Committee
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Why? There are more than 10 million cancer survivors in the United States. With an aging population—and consequently more people at risk for the disease—those numbers are likely to increase substantially in the coming years. As survivors and co-survivors (family members) face the new challenges, they have a need for after-treatment services and support. They are faced with trying to define “a new normal” after what can be a life-changing event. | WHAT CAN BE DONE - Meet the needs of patients and survivors by eliminating the gaps in services.
- Implement a holistic survivorship and rehabilitation program to offer care and services to cancer survivors.
- Fund services for the underinsured or uninsured.
- Through collaboration with the Workplace/Workforce Committee, help survivors in the workplace.
- Make sure every cancer survivor has access to a wellness coach to promote physical and psycho-social support.
- Address the information gaps about resources for Quality of Life issues by creating a guide for patients and families.
- Facilitate access to, information about and funding for home-based care.
- Train health care providers on palliative care, survivorship, rehabilitation and end-of-life care.
| ESTIMATED NUMBER OF CANCER SURVIVORS IN THE UNITED STATES FROM 1971 TO 2003 2005, National Cancer Institute. U.S. estimated prevalence counts were estimated by applying U.S. populations to SEER 9 and historical Connecticut Limited Duration Prevalence proportions and adjusted to represent complete prevalence. Populations from January 2003 were based on the average of 2002 and 2003 population estimates from the U.S. Bureau of Census. | ESTIMATED NUMBER OF PERSONS ALIVE IN THE U.S. DIAGNOSED WITH CANCER BY CURRENT AGE* 2005, National Cancer Institute. U.S. estimated cancer prevalence counts were estimated by applying U.S. populations to SEER 9 Limited Duration Prevalence proportions. Populations from January 2003 were based on the average of 2002 and 2003 population estimates from the U.S. Bureau of Census. *Invasive/1st Primary Cases Only, N = 10.5M survivors | ESTIMATED NUMBER OF PERSONS ALIVE IN THE U.S. DIAGNOSED WITH CANCER ON JANUARY 1, 2003, BY TIME FROM DIAGOSIS AND GENDER* 2005, National Cancer Institute. U.S. cancer prevalence counts were estimated by applying U.S. populations to SEER 9 Limited Duration Prevalence proportions. Populations from January 2003 were based on the average of 2002 and 2003 population estimates from the U.S. Bureau of Census. *Invasive/1st Primary Cases Only, N = 10.5M survivors |
Click each goal to read about the objectives, tasks and timeframes.
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Goal 1:
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Eliminate gaps in quality-of-life services (e.g., rehabilitation, survivorship, palliative care and endof-life care) to meet the needs of patients, survivors and co-survivors without duplicating current services. |
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Year 1
$25,000
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Year 2
$80,000
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Year 3
$80,000
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Year 4
$80,000
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Objective 1A:
Perform a needs assessment analysis. |
| Task/Action |
Responsible Party |
Timeframe |
| Research other needs assessments that have been completed to determine if the results could be used to inform the committee. |
DCC Quality of Life Committee |
Year 1 |
| Conduct a statewide needs assessment. |
DPH and contractor |
Year 1 |
| Validate the findings of the assessment by surveying cancer survivors, caregivers and current cancer patients. |
DCC Quality of Life Committee |
Year 1 |
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Objective 1B:
Develop a comprehensive quality-of-life statewide program that incorporates culturally and linguistically competent services and programs. |
| Task/Action |
Responsible Party |
Timeframe |
| Assess best practices and other state models. |
DCC Quality of Life Committee |
Year 1 |
| Create or adapt a comprehensive quality-of-life care model for Delaware and disseminate to health care providers and caregivers statewide. |
DCC Quality of Life Committee |
Year 2 & ongoing |
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Objective 1C:
Implement a holistic survivorship and rehabilitation program to provide comprehensive care and support services to cancer survivors and co-survivors. |
| Task/Action |
Responsible Party |
Timeframe |
| Examine existing survivorship and rehabilitation services, including vocational rehabilitation services, in the state to determine replication |
DCC Quality of Life Committee |
Year 1 |
| Collaborate with the DCC Workplace/Workforce Committee to examine the challenges patients face in maintaining employment both during and following cancer treatment, and explore opportunities to facilitate and encourage employers and employees in this process. |
DCC Quality of Life Committee & DCC Workplace/Workforce Committee |
Year 1 |
| Fund survivorship and rehabilitation services for underinsured or uninsured clients. |
General Assembly |
Year 2 & ongoing |
| Ensure all cancer patients have access to a wellness coach to promote physical strength and enhance psycho-social support to maximize positive treatment and rehabilitation outcomes. |
Quality of Life Committee, Wellness Community and Cancer Care Connection |
Year 2 & ongoing |
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Goal 2:
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Create a comprehensive guide to services and resources available to patients and families. |
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Year 1
$20,000
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Year 2
$10,000
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Year 3
$10,000
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Year 4
$10,000
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Objective 2A:
Evaluate current cancer information resources (e.g., websites and support services organizations) and assess potential gaps in quality-of-life information. |
| Task/Action |
Responsible Party |
Timeframe |
| Inventory available quality-of-life resources and assess gaps in information resources; assess whether information is accessible to patients, families and health professionals. |
DCC Quality of Life Committee, Cancer Care Connection and DE Helpline |
Year 1 |
| Collaborate with the DCC Communication & Public Education Committee to determine the best mechanism to present informational resources. |
DCC Quality of Life Committee |
Year 1 |
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Objective 2B:
Provide access to quality-of-life resources to the public and health professionals to inform, educate and support multidisciplinary care. |
| Task/Action |
Responsible Party |
Timeframe |
| Create a comprehensive guide of current services and make this available through the Internet, print media, Delaware Helpline, and other partner agencies and service providers. |
DPH, DE Helpline and Cancer Care Connection |
Year 2 |
| Evaluate the use and thoroughness of the resource guide on an annual basis. |
DCC Quality of Life Committee |
Year 2 & ongoing |
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Goal 3:
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Implement a patient-driven treatment model that maximizes the opportunity for home-based care. |
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Year 1
$20,000
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Year 2
$20,000
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Year 3
$20,000
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Year 4
$20,000
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Objective 3:
Educate, empower and support patients and caregivers to receive home-based care when appropriate. |
| Task/Action |
Responsible Party |
Timeframe |
| Provide patient and caregiver education and facilitate access to home-based support. |
Cancer Care Coordinators |
Year 1 & ongoing |
| Expand the use of hospice services to situations other than those of crises, and redefine the ways and populations for whom hospice services can be presented. |
DCC Quality of Life Committee |
Year 1 & ongoing |
| Provide funding for essential items that allow patient transfer to home care (for example, DME, caregiver assistance and assistive technology). |
General Assembly |
Year 2 & ongoing |
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Goal 4:
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Support quality-of-life training and education services for health care providers with an emphasis on palliation, survivorship, rehabilitation and end-of-life care. |
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Year 1
$43,000
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Year 2
$43,000
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Year 3
$30,000
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Year 4
$20,000
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Objective 4A:
Provide statewide End-of-Life Nursing Education Consortium (ELNEC) training. |
| Task/Action |
Responsible Party |
Timeframe |
| Establish training for the Cancer Care Coordinators based on the End-of-Life Nursing Education Consortium (ELNEC) “Train the Trainer” model. |
End of Life Coalition |
Year 1 & ongoing |
| Provide the basic ELNEC program (9 hours) on CD-ROM to 50 health professionals per hospital; utilize video conferencing to provide discussion opportunities. |
End of Life Coalition |
Year 1 & ongoing |
| Partner with colleges to ensure that students entering the health care field receive ELNEC training. |
DCC Quality of Life Committee |
Year 2 |
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Objective 4B:
Support continued education for physicians, hospitalists and hospital staff (education will emphasize end-of-life, rehabilitation, vocational rehabilitation, survivorship and palliative care). |
| Task/Action |
Responsible Party |
Timeframe |
| Provide CME-accredited quality-of-life training modules on site for physician practices and hospitals. |
DCC Quality of Life Committee, community partners |
Year 2 & ongoing |
| Provide health care professionals with tools that they can use in practice such as pocket card guidelines based on accepted practice guidelines. |
DPH |
Year 2 & ongoing |
| Implement quality-of-life training sessions for hospital-based staff so they can accurately articulate and disseminate information to patients and families. |
DCC Quality of Life Committee, community partners |
Year 2 & ongoing |
| Provide training to discharge personnel on discharge to the appropriate level of care. |
DCC Quality of Life Committee, community partners |
Year 2 & ongoing |
| Develop and implement a report card system for institutions and practices; the credentialing program for screening may be used as a model. |
DPH, DCC Quality of Life Committee |
Year 3 & ongoing |
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Objective 4C:
Provide training to nursing home staff. |
| Task/Action |
Responsible Party |
Timeframe |
| Educate nursing home staff on quality-of-life issues; provide access to an online tutorial. |
DCC Quality of Life Committee |
Year 1 |
| Recommend satisfactory completion of the quality-of-life tutorial as part of nursing home employment requirements. |
DCC Quality of Life Committee |
Year 1 |

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