Data Committee

Why? Data is the foundation of all we do.

We are using information gathered from the Delaware Cancer Registry, our own committees and other sources to learn more about cancer in Delaware. When data is unavailable or incomplete, we focus on creating new or refining existing systems to gather it. More specifically, the new Data Committee will acquire and examine claims data to help committees better target interventions. We are going to investigate patients with stage 3 colorectal cancer who received chemotherapy to track treatment. All committees will also be using data to align their decision-making. The value of data in our continuing cause to reduce cancer incidence and mortality in Delaware is profound. It provides information that gives us knowledge, which ultimately results in understanding that drives actions that make a difference.

WHAT CAN BE DONE

  • Continue to acquire data relevant to each committee
  • Develop and implement health claims data acquisition methods
  • Evaluate the value of other data resources
  • Continue to serve as subject-matter experts to other committees

Click each goal to read about the objectives, tasks and timeframes.

Goal 1:

Develop and implement health claims data acquisition methods and processes that ensure availability of these data for Consortium members/initiatives and provide for systematic capture and appropriate utilization.

Year 1
$10,000
Year 2
$50,000
Year 3
$75,000
Year 4
$100,000
Objective 1A: Acquire and process initial “pilot” dataset.
Task/Action Responsible Party Timeframe
Develop data acquisition agreements and processing procedures. DPH, Medicaid/other insurer representatives Year 1
Process, analyze and evaluate the data. DPH Year 1
Demonstrate proof of concept; that is, demonstrate value added for cost expended. DPH Year 1
Objective 1B: Develop level-of-effort estimates for additional datasets, such as ones from other insurers.
Task/Action Responsible Party Timeframe
Ascertain volume of available, desirable data and requisite processing capacity. DPH Year 1
Estimate value added for cost expended. DPH, DCC partners Year 1
Objective 1C: Implement routine health insurer claims data acquisition, processing, analysis and, where appropriate, integration.
Task/Action Responsible Party Timeframe
Fund additional acquisition(s); build/buy processing capacity. General Assembly Year 2 & ongoing
Expand acquisition to include other insurers’ data. DPH, insurer representatives Year 2 & ongoing
Process, evaluate and integrate data proven to be of value. DPH, processing contractor (if any) Year 2 & ongoing

Goal 2:

Enumerate, explore and—if value proven—acquire and integrate data with added value from other electronic sources.

Year 1
$0
Year 2
$10,000
Year 3
$15,000
Year 4
$250,000
Objective 2A: Evaluate quality and value of other supplementary electronic data.
Task/Action Responsible Party Timeframe
Obtain census data and develop SEP “profiles” by geography; for example, by census tract and ZIP codes. DPH Year 1
Research Claritas data for content and costs. DPH Year 1
Demonstrate proof of concept; that is, demonstrate value added for cost expended. DPH Year 1
Objective 2B: Acquire/utilize data of proven value.
Task/Action Responsible Party Timeframe
Maintain currency of census data–based SEP geographic “profiles.” DPH Year 2 & ongoing
Analyze and incorporate data from other sources. DPH Year 2 & ongoing

Goal 3:

Receive information from other committees and implement a work system to evaluate data and report back to committees.

Year 1
$0
Year 2
$0
Year 3
$0
Year 4
$0
Objective 3A: Prepare and distribute a ready reference of common, useful data sources.
Task/Action Responsible Party Timeframe
Compile/distribute table/listing of useful data sources. DPH Year 1 & ongoing
Maintain/update annually. DPH Year 2 & ongoing
Objective 3B: Assist other committees of the DCC with their data needs.
Task/Action Responsible Party Timeframe
Leverage existing data to ensure maximum benefit. DPH Year 1 & ongoing
Respond to requests for assistance with data acquisition/utilization. DPH Year 1 & ongoing